Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...

Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age ...

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA ...

A group of questionnaires called PROfuture can meaningfully measure a variety of symptoms of SMA that impact patients, a ...

For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in ...

Joanna Buoniconti is a writer and editor based in western Massachusetts. She was diagnosed with SMA type 2 in 2000 at 10 ...

Columnist Sherry Toh discovers that an app's guys can treat her like any other woman — which makes for a lot of potential bad ...

Upgrades to the home of a person with spinal muscular atrophy can ease daily SMA accessibility challenges and support greater ...

Molecular markers in cerebrospinal fluid may help predict if people with SMA type 2 or type 3 will respond to treatment with ...

Guest writer Joanna Buoniconti says that new treatments have granted her many things she's grateful for, including the ...

Evrysdi treatment is safe and effective at improving or stabilizing motor and lung function in adults with SMA for up to 2 ...