Columnist Helen Baldwin pays tribute to a late member of the SMA community whose positive impact on the world is immeasurable ...
The European Commission has given approval to a high-dose regimen of Spinraza (nusinersen) for people with 5q spinal muscular ...
A Google spreadsheet helps columnist Connie Chandler set the schedule for her caregiving team, who provide her with ...
Finding medical providers who will work with her public health insurance has proven to be a challenge, says columnist.
A study tested 38 children with SMA who took part in an eight-week breathing exercise program, with some also engaging their ...
A small molecule known as 10H-phenothiazine reduced the loss of motor neurons, the nerve cells that are lost in SMA, in ...
People with more severe SMA had fewer motor units, and the remaining ones were unusually large. These nerve–muscle changes were strongly linked with current motor ability. Researchers say these ...