Twins Toby and Cory, and their little sister Izzy all have the rare condition juvenile Batten disease. Children with this disease experience devastating symptoms including sight loss resulting in blindness, tremors, epilepsy, problems with balance and walking, behavioural and psychological issues. And tragically, the disease is fatal. We have recently funded a study that could offer the first-ever medicine for children suffering from the condition - giving hope to parents Dee and Jody, that one

This family only has one month to fund life-saving treatment for their little girl. Share now to help them reach their goal. | GoFundMe